When Emily and I walked into the ICU at Texas Children's on
Monday, Dahlia was being rocked by her favorite nurse (and her very first "boyfriend"), Jimmy. He's just a young single guy who happens to be one of the best pediatric intensive care nurses around. Does he ever have a way with the babies! He has some mean baby swaddling skills and knows just how to comfort a baby. We sure missed him when we had to leave the 18th floor ICU to move to the NICU on the 4th floor. Since Dahlia is now considered stable, her space was needed by a baby who was in a more critical condition. (There are a bunch of other really awesome nurses here too, but we'll especially remember Jimmy.)
Also, on
Monday, Dahlia took another step ahead and was able to take her first nourishment by mouth. Considering this was the first time she ever had a bottle, she caught on real quickly and was so content after. She still was also on continuous feeding through the tube going into her nose and down to her tummy. (the gloved hand belongs to the occupational therapist who helped with that first bottle feeding.)
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| "I'm so interested in that rattle Momma got me." |
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| "But I'm even more interested in looking at my Momma." |
Wednesday was another good day in the ICU, and even better when Grandmother Gwen (Nana) came and had the joy of holding her sweet little one for the first time since the hospitalization. Between us two Grammies, there have been enough prayers said to move a mountain, besides enough tears to fill a lake.
Everyday this week, Dahlia has remained stable and has been making baby steps ahead. On Friday, the bottle feeds were increased so she needed only intermittant feeds through the tube, and finally she got a little break from that tube.
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| "What does a girl have to do around here to get a make-over?" |
Sunday (Nov.6) End of 3rd week in ICU. Dahlia is now 6 weeks old. To me, each day has brought answers to prayers. This week she made much progress with her feeding, and is starting to finally gain weight. When Brian and Emily got home from the ICU tonight, they said, starting today, Dahlia is now being bottle fed every 3 hours -- no more tube feeding! (they will still keep the tube in her nose for a little while, just in case) She has also tolerated the gradual weaning down of the intravaneous heart medicine -- replacing it with one that can be taken orally. They are going to continue to do so. We are praying that her heart function gains the strength it needs so she can survive without a heart transplant. She needs to be able to feed well by mouth (check), and to survive with the heart med. taken by mouth to be able to come home. Thank you dear family and friends for all your prayers that help give this little baby and her family the strength needed during this difficult time.